It's been a long 7 hours at the hospital today but KJ is now home from the lumbar puncture. It was not without drama as the poor little thing had a total meltdown and decided she just couldn't go through with another lumbar puncture right before they took her back. God gave me the words and the attitude to deal with her, to let her work it out and not to overwhelm her with platitudes. It was so tough on me to be aloof and unfeeling with her while she was melting down but she had to make her own decision on this one. In talking with the doctor who did the procedure as well as the nurses, we decided it would be better if I was not in there with her and I told the nurses I was entrusting my daughter to them and I would be listening at the door. They would need to be compassionate, have a good sense of humor and help her keep it together. At times, it sounded like Room 7 where the procedure was being done was where the party was. I heard laughter and in that laughter and talking, a whole lot of love coming from that doctor and two nurses for the 45 minutes it took to get it done. We got her back to the Holding area and after two hours and pain meds, I got to bring her home. She has an apt. with the neurologist on August 5 and he should have the test results. I looked at her back and this was not a traumatic tap. This doctor was phenomenal. If all goes well, we will be taking her home on Saturday to reunite with her dachsie, Katie.
I want you to keep CJ and his family in your thoughts and prayers.
I thought my cancer and fibro was tough to handle. CJ, you are my inspiration, son. You have gone through the fire and come out on the other side.
CJ, you have learned so much in the last year and had experiences that some people never go through in a lifetime, much less a year. I am so proud of you and how you are handling this transition in your life. Please know that I will keep the prayers going and the candle burning for you and you will be a better person for just having walked this path.
Look in the mirror, CJ, and know that the guy looking back at you is phenomenal.
Know that and know that deep.
One day you will look back and you will see how this was part of the plan for your life.
When the going gets tough, the tough get going.
a beacon... - ...not to be confused with bacon. yep, I'm still here and really need to update but life has been so freakin' crazy that I don't know where to start. How...
1 week ago