That is Kiereney's diagnosis.
Basically either a)she is making too much spinal fluid and her cerebral spinal fluid pressure is elevated and b) her body is not absorbing efficiently the spinal fluid she is making. So we have headaches and Vitamin A makes it worse(no more carrots that she loves). They call it pseudo tumor(false tumor) because the increased spinal fluid pressure on the brain makes the brain think it has a tumor.
The neurologist put her on a med called Diamox 500 mg twice a day and will recheck her in 6 weeks. She will stay on this med for a year or two and they will wean her off and see what the headaches do. It takes 7 days for the med to kick in.
If this does not work, our other two options are to have weekly spinal taps to reduce the fluid level or to have a shunt put in her lower back with a pressure dial on it that the surgeon will set to 16 and when it goes over 16, the shunt will open and drain the fluid into the abdomen until the pressure gets back down to 16.
After getting the spinal tap results and reading about the condition online, she is a textbook case.
Anyway, it feels good to have a name for the monster that has been invading our lives since April.
Roger is healing and can now wear a lace up shoe for 3 hours a day.
All in all, we got answers and I can deal with that.
Thanks for all your prayers, good thoughts and caring. It makes/made a difference.
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