09 September 2008

Update on Kiereney

In short, Kiereney was hospitalized Friday in Marion, IL(2 hours south of me) for headache. Spinal tap was done and pressure was 40(normal 20). She was released to me Sunday afternoon and I took her to her neurologist here in Belleville where we live and she collapsed in their office. An ambulance was called and she was taken to St. Elizabeth's Hospital in Belleville. A CT scan later, it was determined that she needed a shunt put into her head to drain the spinal fluid...however there was too much pressure in the head that narrowed the ventricles so a shunt could not be done in the brain and it was to be put in her spine and drained into the abdomen. She was admitted and surgery scheduled for Tuesday.

However, at 3 this morning Kelli called and she had spiked a 103 fever(ALL labs drawn yesterday came back normal) so surgery was cancelled. They are doing chest x-rays, blood cultures and she is scheduled for an EEG with emphasis on brain stem function this morning.

Roger is with her now. Kelli relieved me at 9 last night and stayed until Roger got there at 6 this morning. I am to relieve Roger at noon. We have to stay with her 24 hours a day because she is incoherent and tries to get out of bed. She also hyperventilates because of the pain and we work with her to calm her down so the nurses won't have to babysit her. Besides, I would be at her side no matter what.

Please pray for her that the source of infection can be found and treated so this surgery can be done. She has lost peripheral vision in both eyes as of Friday night. Both optic nerves are swollen and we have been told that she could lose her sight permanently. Also, there is great risk anytime you do spinal surgery.

I know God is an awesome God and will keep us strong and find a way to pay for this since she has no insurance. We're exploring state aid and Medicaid. Her working future is uncertain and to have this at age 21 is bearing hard upon her. If I could take it from her and upon myself I would as I have lived life.

Will update as I can.

Thank you for your prayers.


Wonderful World of Weiners said...

I will be truly be thinking of no one else today other than KJ. I have no idea what I can do for you all being so far away but know that I'm here for you.

My heart is heavy for you all but I remain optomistic. I will pray that God brings her relief quickly.

Stay strong and call/text as much as you need to.



Maribeth said...

Prayers being sent from NH.

Tracy said...

My heart fell when I read all that has happened to your baby girl-praying that they find the source of the infection and can do surgery as soon as possible. You are a great mom and I know you are hurting right along with her.
Praying you all!

Steph said...


Keeping KJ and your whole family in my prayers. Please call if you need anything or just to talk.


jojo said...

Thanks for the update Ness. Will be thinking of your Kiereney and sending prayers for all of you. Please know that my heart is aching right now for your sweet, sweet girl.

Michelle said...

Ness, Know that you all are covered here in Florida. Keep the faith and don't give this blogging world another thought. If you txt Hallie have her let the rest of us know how things are going. And take care of yourself too.

dlyn said...

Oh Ness - I am so sorry that you are all going through this - praying that they will be able to stop all of this and get the poor girl on the road to recovery. And strength for you.

Debbie said...

I will be praying for Kiereney and all of ya'll. I am sure that God will make her better fast. If you need anything, let me know. Just know you are in our prayers and thoughts and we love your family.

God Bless~

Laura ~Peach~ said...

wow how distressing Our prayers are added to yours for her sight, pain relief, and the ability to do this surgery... and the source of infection to be found and taken care of... and for many spoons of strength for you and the rest of you who are helping keep our girl safe.
Love n hugs Laura
ps you have my number call if you need to!

Kimmy said...

Oh Ness, I am so sorry to hear about Kiereney's health. This must be so difficult for you and your family. Sending hugs your way. I'll say a prayer for you.



My prayers are with Kieerney & your family. Thanks for keeping us posted!

AirmanMom said...

God's amazing grace and a mother's love will see your baby through this horrible ordeal.
My constant prayers are being lifted to your entire family.

~AirmanMom returning to her blog...

Alice said...

More prayer than you'll ever know, dear friend. For all of you. Please keep us posted. Sending love and light your way.

krissy said...

coming from the wonderful world of weiners. I am praying that this is resolved soon. How scary.

Prayers are the best medicine. I am going down on bended knees for this prayer. I couldn't imagine.

I am very optimistic that this will be a story that you and KJ can tell in the future together. God is good.

Hope, Faith, Love.

Tonjia said...

Oh Ness, I am so sorry that Kierney is going through all of this. She is definately in my prayers, as are all of you.

Please keep us updated in some way. I wish we were all closer to help you guys out.

((((((((((((((Ness and family)))))))))))

Debra W said...


My thoughts and prayers are with you and your family as Kiereney goes through this battle. I pray that her sight returns completely, and that there is no permanent damage. I pray that the doctors and nurses will get to the bottom of the infection so that they can do what is necessary to restore Kiereney's health. I pray that you will be blessed with strength so that you can assist your dear daughter as she goes through this difficult time.

I am sending you lots of hugs, Ness. Please update as soon as you know something.


jojo said...

still praying...take care Ness

Alice said...

Continuing prayers from Georgia.