04 February 2013

I have no words anymore...

Kiereney goes back to SLU for surgery this Friday.
THIS TIME they are going to have to suction out a subdural hematoma under her head shunt, take out the head shunt, put in a new head shunt, put in an intercranial pressure catheter, make an incision in her chest to pull the head shunt down to connect to the month old new abdominal shunt and then put her in ICU.  She will remain in ICU until the catheter has been out of her head for 12 hours.  Because of her condition, she has to sign over power of attorney to me to make medical decisions.
And how did THIS come to be?
In true Kiereney Jo style, she climbed up on the kitchen counter at her sister's to retrieve the pizza box on top of the upper cabinets.  On top of the pizza box were the breadsticks.  She said the breadstick fell off into the floor, she was afraid the dogs would fight over them and she went to jump down from a height of 9 feet (4 feet off the floor plus her 5 ft. height), caught her foot on something above the floor and landed head first with the head shunt facing the floor (it sticks out like a ping pong ball) and landed directly on the shunt, denting in the shunt.
Called the neuro on call and he said since her sister is a nurse, they can watch her at home although he said he was SUPPOSED to tell her that she had to come into ER to be checked.  Those words would later bite him in the tush.
Saturday was OK with just a headache.
Sunday she started leaking cerebrospinal fluid out of her nose/ear and then her shunt exploded and she started bleeding out of her scalp.  Kelli's fiance' took her to ER cause Kelli was down with an impacted sinus infection and with her MS, she can't be in an ER breeding with germs.
Six hours later after the MRI, they determined that she had a subdural hematoma from the fall under the shunt.  The pressure of that made the shunt explode.  They called in HER neuro, which is not heard of on weekends.  He listened to the recorded call where the Dr. on call told her to stay home (he may be looking for a new job by now) and scheduled her for surgery on Friday.  They ran in IV antibiotics and put 2 stitches in her scalp to close the wound and sent her back to her sister's.
So I will be keeping the road hot from IL to St. Louis, MO on Wednesday to a doctor's apt, on Thursday to admit for preop tests and Friday for her surgery which is scheduled around 2 p.m.
Roger's pulmonary function studies are worse so we go back on the 12th to see what, if anything, can be done for his lungs.  We knew it would be a race to see if his heart or lungs gave out first.
Kelli is shopping for a new neuro.  She is constantly having MS flares and now she is working full time again.  She had a neuro apt. today and he was basically useless.  Until she gets married and gets on military insurance, she can't afford her MS injections.  He would not give her any pain pills because he said they only bring temporary relief.  Duh...
Michael has a 2nd interview this Thursday with the Brigadeer General to be deployed as an aide de camp for the General at the embassy in Saudi Arabia.  We pray he gets it.  He will deploy in May for 400 days.  First job he will have since he got back from the Sinai on the last deployment 2 years ago.
Me?  Who has time to check?  Have been crocheting cotton dish cloths to keep myself halfway sane. 
And yes, I'm still believing...
Will update at the end of the week.


joanne said...

you are the strongest woman I know Ness, strong and brave. I am here praying and holding you tight, my heart beats with yours as we lift your family in prayers of healing. love you.

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